Do you or members of your family have a history of colorectal, endometrial, or other
Lynch Syndrome related cancers?
Have you or a family member been told that you may meet criteria for a diagnosis of
Lynch Syndrome?
If you answered yes to either of these questions or would simply like to learn about
Lynch Syndrome, you may find useful information in this blog. By visiting the different posts
you will learn about your risk, what you can do if a family member is affected, and how your healthcare provider can help.
Our hope is that by providing basic fundamentals about Lynch Syndrome diagnosis and
treatment, you will gain awareness and understanding of this syndrome. We encourage
you to work with your healthcare provider to apply this information to your personal and
family medical history.
In this blog you will find 5 blog post topics, 1- What is Lynch Syndrome, 2- Surveillance, Compliance and Management, 3- Lynch Syndrome and Your Family Health History, 4- Understanding Genetic Screening, 5- Some Topics to Discuss With Your Lynch Syndrome Healthcare Specialist.
This blog is interactive and comments and questions are encouraged.So please let us know what you are thinking.
In this blog you will find 5 blog post topics, 1- What is Lynch Syndrome, 2- Surveillance, Compliance and Management, 3- Lynch Syndrome and Your Family Health History, 4- Understanding Genetic Screening, 5- Some Topics to Discuss With Your Lynch Syndrome Healthcare Specialist.
This blog is interactive and comments and questions are encouraged.So please let us know what you are thinking.
Thank you for informing the public of this disorder. It is not well known and I envision your blog will serve as a health information and promotion tool of information for those at risk! Dr. D
ReplyDeleteThank you for your comment Dr. D. I agree that the public has little knowledge of this disorder. It came as a surprise to me that healthcare providers (as was I) also are unfamiliar with Lynch Syndrome. I did an informal survey at my hospital. Nurses on the Med-Surg Unit, CCU and Telemetry had no knowledge of Lynch Syndrome. An Intensivist in the ICU had heard of the syndrome and related it to cancer but was vague on the details and a Gastroenterologist knew about the syndrome but admitted it wasn't usually on his radar and felt it was quite rare. Neither MD's related Lynch Syndrome to cancers of the female reproductive system. This was a real eye opener for me.
DeleteI speak for Team Lynch when I say that sharing information about Lynch Syndrome has been an incredibly rewarding experience. We are thrilled that our blog is receiving visits from the US and around the world. Lynch Syndrome International and Kintalk.org (geneticists from UCSF) have picked up our blog on the internet and have posted and tweeted about it to their followers and that has increased our following. Each person who spreads the word about the underdiagnoses of Lynch Syndrome potentially helps to save a life and or the lives of an entire family.
LSI education and community outreach in Texas.
ReplyDeletePatrick Lynch, M.D. was the speaker at a free community outreach meeting about Lynch syndrome held in Dallas, TX on Saturday, August 16, 2014. Local physicians, nurses and genetic counselors served on the Q and A panel to ask questions from the audience.